The Johnston Family

The Johnston Family

Tuesday, November 9, 2010

Sometimes When it Rains it Pours

Well it's been a while...let me tell you why. Friday Oct 8th I had a dizzy spell in the afternoon that passed after an hour or so, but that night while shopping with Tony and Liz after going to three stores the world started spinning right in front of my eyes and no amount of blinking could make it stop, as we were heading home I lost my stomach and the decision was made to go to Insta Care we had Ketty meet us there and take Elizabeth and after seeing the dr was said to have severe Vertigo and was prescribed basically an anit-nausea and motion sickness pill only problem was I couldn't keep my stomach down long enough for them to do anything, Tony and one of our home teachers(and great neighbor) gave me a blessing, but nothing seemed to make the world stop spinning or keep my stomach down, so by Saturday morning we pawned Liz off on the best neighbor ever at far too early in the morning and went to the ER as recommended by the on call OB, where they finally got my stomach to stay down but the world just wouldn't stop spinning. I got up to go the bathroom for them and my "walking"(with Tony and the nurse) really red flagged my ER doctor...so the tests began. The MRI lasted nearly an hour, the spinal tap had two very painful failed attempts and an emotional tearful decision to use the low dose X-Ray to finally get the needed spinal fluid, the neurologist came in and did some coordination tests which showed some lack on the left side of my body, and apparently my eyes did interesting things...I was just trying my hardest to follow the finger! By the afternoon the decision was made to admit me into IMC on the neurological floor for a possible stroke in my left Cerebellum. I spent 6 days in the hospital getting woken up around 5 am every morning to get my blood drawn, had two more MRI's, two ECHO's done on my heart, saw my OB that Monday and learned that little man was doing fine, had numerous evaluations, and worked with the physical and occupational therapists. The day I was released we went straight to the hearing and balance center for more testing, which pointed to a central nervous system problem, then I went and saw my ENT who did another hearing test and looked everything over and sent me back to the Hearing and Balance Center to confirm the previous results which it did so he sent me to a neurologist who set me up with more physical and occupational therapy at the TOSH. All in all they never were able to exactly pin point a stroke but they also couldn't use contrast with the MRI so they may just not be able to see it, so they're treating "stroke like symptoms". And in all that we had our big ultrasound to make sure baby wasn't negatively affected by all this...and they checked everything like three times over by both the tech and the doctor, and found no ill effects thankfully we also learned that healthy baby was officially a BOY!!
Shortly after I got out of the hospital Elizabeth got a "strep like virus" with a fever of 104 and was absolutely miserable, then she started coughing and sniffling and a couple weeks later she was treated for a sinus infection. She's doing well now thank goodness, and we all caught a bit of her sickness that we're all finally over it.
As of now I'm super dizzy all the time no matter what, and my left leg and arm are very weak and my left leg is super uncoordinated, I use a walker to get to the bathroom, spend all day and night in our new red recliner(as I can't stand or walk none the less climb stairs up to our bedroom) and if I have to go more than 40 feet I have to use a wheelchair as that's all my body can take. This is my first week of therapy so we'll see how long it takes to see some improvement but my PT tells me not to hold my breathe or get discouraged because I have a very long road in front of me and I may or may not get back to how I was before this. All we can do is all we can do.
I'll try and get some of the fun cute pics of the fun things we've been up to the past little while.

"Life isn't about waiting for the storm to pass, it's about learning to dance in the rain."

1 comment:

Julie said...

Wow, Jess. What a crazy few weeks it's been for you. I had heard you were sick, but I had no idea just how much you are going through right now. Our prayers are with you and your family and the little guy. I am so glad he is doing well, and congrats--how fun to be having a boy!